The Hemispherectomy Foundation
Imagine being told that your child has a very cruel and extremely rare brain disease, and the only hope for survival was the removal of half their brain. Cris and Kristi didn't know what to do, nor with whom to speak. Having access to a referral list of fellow parents going through this same nightmare, would have meant the world to them.
There was no foundation or charity in place to seek for organized support or the distribution of educational materials.
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